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Project Fionigan
A plain-language page about FND, communication access, and how Project Fionigan helps keep a patient’s story together when lived explanation becomes difficult.
Project Fionigan keeps fragmented FND information connected, source-linked, and human-readable when lived communication becomes difficult.
New to FND? Functional Neurological Disorder (FND) is a real neurological condition that affects how the brain sends and receives signals, which can cause problems with movement, speech, sensation, thinking, or seizure-like episodes. NIH/NINDS overview.
I am not learning how to have FND. I am learning how to have FND publicly.
FIRST AND FOREMOST
This is a medical journey with family in the boat.
The starting point is a real person living a medical and accessibility journey. Family is in the boat too. Project Fionigan is the navigation layer for that boat: it helps keep the medical journey, documents, questions, access needs, and next steps from scattering.
The website, overlay, pages, documents, and conference materials are context around that journey. The public version stays de-identified and informational.
One-page report
Back page / handout page 2 is public-facing
The public webpage now shows the actual back-page continuity printout. The front/photo/history side is download-only.
One-page report
Front page / back page structure restored
The public one-page report structure is restored as de-identified framework content: the front page is history, and the back page is the continuity/action side.
Public de-identification
Public version is de-identified
Patient-specific names, provider names, facility names, email addresses, record identifiers, exact identifying routes, and raw source records are removed or generalized in this public website version.
Objective source status
Source document status
Open the source-status index to see what is already on the site, what is staged privately, and what still needs upload or redaction.
Downloads, questions, and follow-up
Public downloads, questions and answers, and follow-up contact information.
Downloads
Download Abstract 178 and the poster
Coming soon
Questions & Answers
A moderated question-and-answer section is planned for questions about FND, Abstract 178, the poster, the one-page report, communication access, and Project Fionigan.
Questions and answers will be reviewed before publication and linked to objective sources where possible. Published answers will be informational and will not be medical advice.
Private medical information should not be submitted publicly. Supporting documentation is retained; documentation requests will be reviewed separately and remain patient-controlled.
Email a question or documentation requestContact
Conference follow-up
Use the conference app for networking, or click the email address below to contact the patient-author.
Please do not send private medical records through this public contact route.