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FNDS 2026 Abstract 178 landing page
Project Fionigan
A plain-language page about FND, communication access, and how Project Fionigan helps keep a patient’s story together when lived explanation becomes difficult.
Project Fionigan keeps fragmented FND information connected, source-linked, and human-readable when lived communication becomes difficult.
Website status notice: This website is being built and updated in real time. It may contain mistakes, incomplete information, or features that are still being reviewed. It is provided for informational and all-inclusive accessibility-first continuity purposes only and is not medical advice, a diagnosis, or a substitute for care from a qualified clinician. The original source records remain the controlling record.
I am not learning how to have FND. I am learning how to have FND publicly.
This is a medical journey with family in the boat.
The starting point is a real person living a medical and accessibility journey. Family is in the boat too. Project Fionigan is the navigation layer for that boat: it helps keep the medical journey, documents, questions, access needs, and next steps from scattering.
The website, overlay, pages, documents, and conference materials are context around that journey. The public version stays de-identified and informational.
Sources:
One-page report
Back page / handout page 2 is public-facing
The public webpage now shows the actual back-page continuity printout. The front/photo/history side is download-only.
The closeout source map now includes de-identified anchors for unanswered FND-author outreach, FND Hope routing, the governor/kernel file, and the FND Society / FND-resource outreach placeholder.
Patient-specific names, provider names, facility names, email addresses, record identifiers, exact identifying routes, and raw source records are removed or generalized in this public website version.
Objective source status
Source document status
Open the source-status index to see what is already on the site, what is staged privately, and what still needs upload or redaction.
How systems discipline, medical continuity, rehabilitation framing, and the one-page report connect.
How the project got here
From systems discipline to medical continuity
Project Fionigan carries forward more than 30 years of experience with school-system technology
and school-nutrition data. That work required accurate records, validation, deadlines, corrections,
and audit trails.
When the medical journey required fragmented neurological records to be reconstructed, the same
systems discipline revealed the central disconnect: the information existed, but it did not reliably
follow the patient.
Project Fionigan applies that approach to FND and medical continuity. It takes unorganized medical
records, dates, notes, test results, questions, corrections, and communication needs; keeps them
connected to their sources; organizes them into a clear chronology; and makes the result human-readable.
The method does not depend on one provider, file type, or medical system. This website intentionally
stays centered on FND, FNDS 2026, the poster, the handout, and the one-page medical continuity report.
Important boundary:
Project Fionigan does not diagnose, replace medical records, provide medical advice, or make clinical decisions.
Sources:
Step 3 — What happened in real time
The continuity failure happened lived, in the room
What happened in the Neurology track happened in real time
The diagnosis, data, and communication attempts existed. The problem was that the information did not follow the patient clearly when decisions were being made.
During the Neurology track at this FNDS conference, the same pattern became visible again. The difference was more time, recognition, and self-regulation. After time spent learning the pattern, it became possible to stay with it, communicate around it, and keep it from taking over. The website became the backup when lived speech could not carry everything.
Everything does not have to be explained lived. The system exists because lived explanation can fail.
Public FND adjustment note
This conference also showed the difference between having FND around family and friends and having FND in public.
The symptoms were not new. The audience was new.
In private life, family and close friends may already understand parts of the pattern. In public settings—conferences, apartment viewings, clinical rooms, advocacy conversations, and professional spaces—the same symptoms can feel new, exposed, and harder to explain.
Project Fionigan exists for that transition point.
It provides context when a person cannot explain everything lived. It gives the record, communication need, symptom pattern, and next step a place to remain connected while the person learns how to navigate FND publicly, one day and one setting at a time.
Rehabilitation and continuity
From rehabilitation to continuity
Physical and occupational therapy helped me learn how to work with changes in movement, function, and communication.
Project Fionigan brings my physical and occupational therapy journey full circle: rehabilitation became continuity, and continuity became something I could share.
How it works
How the one-page continuity report works
A clinician-facing accessibility-first continuity tool
The one-page report is part of an all-inclusive accessibility-first continuity program designed to help the most important information follow the patient when speech, typing, memory, stamina, or lived explanation becomes difficult.
It can organize the timeline, key sources, communication needs, corrections, and open questions into a short, human-reviewable format.
Track continuitySymptoms, triggers, records, appointments, and open questions stay connected.
Support communication accessPrepared materials carry meaning when speech or lived explanation fails.
Reduce repeated retellingThe patient does not have to rebuild the full story at every handoff.
The working report and underlying medical records remain private while the all-inclusive accessibility-first continuity program continues to be reviewed and developed.
Important boundary: Project Fionigan does not diagnose, provide medical advice, replace medical records, or make clinical decisions. The public website explains the program; personal medical records and working continuity reports remain private and patient-controlled.
Conference handout
The handout introduced the one-page report concept
ER-to-conference continuity note
What happened in the Neurology track looked like the same kind of escalation pattern from the ER, but this time the outcome was different.
This time there was more time, recognition, and self-regulation. The pattern could be managed, communication could continue around it, and it did not take over.
Public/private boundary: The public website explains the program. Personal medical records and working continuity reports remain private and patient-controlled. Redacted source material may be released later after review.
Sources:
One-page report
Front page / back page structure restored
The public one-page report structure is restored as de-identified framework content: the front page is history, and the back page is the continuity/action side.
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