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Project FioniganFND · CP · Sarcoidosis · Patient advocacy
Project FioniganHIGH PatientA Medical Story Built From More Than One Record
HIGH Patient · Landing page

A Medical Story Built From More Than One Record

HIGH Patient is the source-aware lived medical story showing why Project Fionigan was needed.

Medical-story framing: The diagnosis was there. The data was there. The continuity failed. This section preserves structural findings, functional findings, lived observations, professional interpretations, and unresolved questions without forcing a false either/or conclusion.

30-second view

A Medical Story Built From More Than One Record

  • Joe was born prematurely and has lifelong cerebral palsy and an extensive surgical history.
  • New upper-body symptoms emerged during the 2021 COVID-vaccine period; chronology is preserved without claiming proven causation.
  • Cervical pathology was documented and a C5–C6 fusion was performed in 2022.
  • Reproducible abnormal movements emerged afterward.
  • Later records documented both structural findings and functional neurological findings.
  • In February 2025, known neurological and communication context did not transfer effectively during an emergency-care and involuntary-treatment sequence.
  • Joe manually reconstructed the record, presented Abstract 178 at the 2026 Functional Neurological Disorder Society meeting, and developed Project Fionigan as a continuity framework.

Three reading depths

Simple first. Deep when needed.

30-second view

A first-time visitor can understand the full arc without reading the complete record.

Two-minute view

Eight expandable era cards preserve chronology without overwhelming the reader.

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Deep review

Events separate what Joe experienced, what records say, conflicts, visibility, and review-needed questions.

Open source map →

Recommended opening copy

The public introduction

Joe Korzen was born prematurely and has lived with cerebral palsy, extensive surgery, and disability throughout his life. Beginning in 2021, new upper-body symptoms led through cervical imaging and surgery, reproducible movement symptoms, structural neurological findings, functional neurological findings, treatment attempts, an emergency-care breakdown, and years of manual record reconstruction. This is not a claim that one diagnosis explains everything. It is a source-aware account of what was documented, what Joe experienced, what remains disputed, and why continuity matters.

HIGH Patient routes

Choose the depth you need.

HIGH Patient

Medical Journey

Eight era cards from birth through current Project Fionigan work.

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HIGH Patient

What the Record Shows

Documented findings organized by source and date.

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HIGH Patient

Lived Observations

Triggers, relief, movement patterns, pain, and functional change.

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HIGH Patient

When the Handoff Failed

February–March 2025 sequence and the continuity lesson.

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HIGH Patient

Source Map

Claim-to-source architecture with visibility boundaries.

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HIGH Patient

Still Needs Review

Contradictions, missing materials, and open questions.

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HIGH Patient

Should This Be Studied?

Research-safe questions and prospective tracking.

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Diagnosis is not the same as navigation. Knowledge + acceptance + self-awareness + lived experience = agency.
I am not claiming certainty. I am preserving plausibility.