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Project FioniganFND · CP · Sarcoidosis · Patient advocacy
Project FioniganHIGH PatientWhat the Record Shows
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HIGH Patient · Source findings

What the Record Shows

Documented findings organized by source type and date without forcing a false either/or conclusion.

HIGH Patient homeMedical JourneySource MapStill Needs Review
Medical-story framing: The diagnosis was there. The data was there. The continuity failed. This section preserves structural findings, functional findings, lived observations, professional interpretations, and unresolved questions without forcing a false either/or conclusion.

What the record shows

Known findings organized by source lane.

Structural and peripheral findings

  1. Cervical MRI findings before surgery.
  2. ACDF at C5–C6.
  3. VCU EMG: chronic left C6 radiculopathy and mild right median sensory mononeuropathy.
  4. Prior orthopedic, spinal, pulmonary, and sleep-history anchors.

Functional neurological findings

  1. Variable or distractible movements described in later evaluations.
  2. NIH Bereitschaftspotential before abnormal movement.
  3. NIH impression of likely functional chorea/FND.
  4. Later movement-disorders framing including functional overlay.

Treatment and response

  1. Botox reportedly produced minimal benefit.
  2. Hyperextension or specific head/neck positioning reportedly reduced symptoms.
  3. Depakote experience is treated as a safety and lived-experience issue requiring source separation.

Continuity and communication

  1. Known neurological context did not travel as one usable handoff.
  2. Records were reconstructed manually across systems.
  3. Accessibility and communication needs became part of the medical story.
The site should ask how structural and functional layers may interact, not declare that one erases the other.