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FNDS 2026 · Abstract 178 · The origin of Project Fionigan

Abstract 178 started the story. The conference changed what the website became.

Project Fionigan began as the public home for FNDS 2026 Abstract 178, the conference poster, and a one-page continuity report. During the conference, a real FND flare-up and communication breakdown turned that static conference page into a live accessibility and continuity demonstration.

That sequence—abstract, poster, one-page report, conference event, and de-identified source trail—is the main story. The wider supporting record remains available throughout the site.

THE MAIN STORY

From Abstract 178 to a lived accessibility demonstration

The website did not begin as a general platform. It began because Abstract 178 was accepted, and the poster and one-page report needed a public home. What happened at the conference then changed the purpose of the site.

1

Abstract 178

The accepted abstract established the five-year FND continuity story and created the reason for the original website.

Open Abstract 178
2

Poster and one-page report

The abstract became a conference poster and a one-page report designed to keep diagnosis, evidence, communication needs, and unresolved questions together.

Open the one-page report
3

The conference flare-up

At the conference, a real flare-up disrupted speech and live communication. This was not simply presentation anxiety; it was the condition and access problem the project was describing.

Read the conference account
4

The website became the demonstration

The site stopped being only a place to host conference material. It became the live accessibility and continuity tool used when ordinary communication became unreliable.

See the continuity framework
5

De-identified evidence and source trail

The medical record, objective sources, claim-to-source crosswalk, and de-identified summaries allow the public story to remain traceable without publishing the raw private record.

Open de-identified sources

See the evidence without digging

The source material remains de-identified and separated from raw private records, but it is now linked directly from the origin story.

Objective sourcesClaim-to-source crosswalkRecord-transfer trailNINDS FND source bridge

CHOOSE WHAT YOU NEED

You do not have to read the whole website

Pick one question. Each choice takes you to the right part of the record.

The complete patient journey

Read the medical story from birth through NIH, Abstract 178, the conference, Project Fionigan, legal advocacy, recording, and ToneLane.

1. What happened?

Start with Abstract 178, the poster, the one-page report, and the conference flare-up.

2. What is FND?

Read the medical and plain-language explanation of Functional Neurological Disorder.

3. Where is the proof?

See de-identified sources, the claim-to-source crosswalk, and the record trail.

4. What happened after the medical failure?

Read the VDH fight, CHRIS report, CICP claim, governor contact, advocacy responses, FOIA work, and current emails.

5. Where is everything else?

Find Stafford, certificates, music, ToneLane, professional history, and archives.

THE ACCOUNTABILITY STORY

The story continued through VDH, CHRIS, CICP, the governor, and recent emails

These are not side notes. They explain how the medical failure became a human-rights, regulatory, federal-claim, records, disability-advocacy, and elected-official escalation. The full sequence now has its own main page.

Open the complete accountability record

THE INTERNET ECOSYSTEM

One patient-centered structure, many institutional verification nodes

Hospitals, universities, agencies, researchers, and advocates can each receive a defined place to verify, correct, dispute, decline, or leave unanswered the part of the record they control.

Open the ecosystem model

The FND origin story stays first. Stafford, certificates, music, ToneLane, professional history, records, and archives remain organized in the full site directory.

The FND story is the front door. The wider record remains.

The following material supports the history, accessibility development, professional background, and later expansion of Project Fionigan. It is not removed merely because the opening is FND-centered.

Open the complete site directory

Stafford County Schools

Wheelchair/accessibility incident and preserved evidence.

Open

Certificates and downloads

Certificates, conference materials, and downloadable records.

Open

Music and Bum-Leg Records

The earlier communication-through-music history and studio work.

Open

ToneLane connection

The audio-engineering continuation of the same source/target/discrepancy logic.

Open

Professional and project history

Background, development history, and framework context.

Open

Continuity archive

Governed history, carry-forward structure, and preserved project record.

Open

THE ECOSYSTEM

FND is medical. A person’s life is larger than medicine.

Many FND resources begin with diagnosis, treatment, and clinical education. Project Fionigan keeps those resources available, but the public front door begins with the person, the family, communication, work, music, access, community, questions, and the record that follows them.

LIVED EXPERIENCE

Patient journey

The five-year lived case, the family in the boat, communication breakdowns, and the continuing search for answers.

Open the medical journey →
PATIENT VOICES

Podcasts

A future patient-led audio lane for lived experience, carers, advocates, clinicians who listen, and conversations that are not limited to a clinic room.

Open Podcasts · Coming Soon →
IDENTITY

Music

Bum-Leg Records, recording history, adaptive communication through music, and the path toward ToneLane.

Open the Music Journey →
COMMUNITY

Patient community

A developing community lane for patient voices, shared experience, practical support, advocacy, and continuity beyond individual appointments.

Open the patient ecosystem →
ACCESSIBILITY

Communication first

Yellow follow-reading, speech support, one-page reports, direct page jumps, mobile use, and continuity when output becomes difficult.

Open the one-page report →
VERIFICATION

Sources without exposure

Public claims connect to de-identified summaries while raw medical and legal records remain private.

Open the source map →

PATIENT-CENTERED DESIGN

The person is not a sidebar to the diagnosis.

Project Fionigan does not remove clinical expertise. It changes the center of gravity. The patient’s lived record, communication needs, observations, goals, family, questions, and corrections remain visible while clinical material is brought into context.

Listen
Document
Connect
Verify
Human decision

FUTURE LANES

Built openly as a living ecosystem.

COMING SOON

Patient-led podcast network

Conversations about diagnosis, flare-ups, family, work, identity, advocacy, research questions, and what patients wish systems understood.

IN DEVELOPMENT

Patient community connections

Project Fionigan is actively developing ways to connect lived experience, patient resources, accessible information, music, podcasts, and community participation.

Original Bum-Leg Records artwork

MUSIC IS PART OF THE PERSON

Bum-Leg Records stays inside the FND story.

The medical journey did not erase the music journey. Music, recording, identity, adaptive communication, and future audio development remain part of the same lived continuity.

Bum-Leg RecordsMusic JourneyToneLane · Separate Site
Open Music Journey

IMPORTANT BOUNDARY

Patient-centered does not mean anti-clinician.

The ecosystem welcomes useful clinical knowledge and professionals who listen. It does not place a clinic, organization, or diagnostic model above the person living the condition. Claims remain source-linked, questions remain questions, and human judgment remains final.

COMPANY AND INTELLECTUAL PROPERTY

Project Fionigan is Patent Pending.

Project Fionigan and its continuity framework are being developed by Nezrok Labs Inc., a Virginia corporation effective June 8, 2026.

The Patent Pending designation applies to the underlying Project Fionigan continuity framework. It does not mean that a patent has been granted.